Grantham community aims to make 5-year-old’s home wheelchair accessible

GRANTHAM — The Leisters’ home is equipped with supplies and written schedules to ensure their 5-year-old daughter, Charley, receives the medical care she needs on a daily basis. But the structural elements of the house fall short in accommodating her. Each day, the Leister family, with assistance from nurses, navigates a lengthy morning and night routine for Charley, who was diagnosed with Aicardi syndrome, a rare neurological condition that affects her eyesight, motor function and frequency of seizures, necessitating full-time care. “It’s not sad,” Charley’s mom, Taylor Leister, said of their life with Charley. “It’s very joyful.” But there are still ways the house can be better adapted to their routine, which currently involves bathing Charley in the kitchen sink because the shower isn’t suitable, and carrying her to areas her wheelchair can’t access.

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